Avery had his appt. with his GI doctor yesterday at CHOP and despite the fact that we got "lost" on our way there........How does that happen???....I have been there a bunch of times and I practically lived there when I was a child!!!.......It went GREAT!!!!
After "seeing" Avery chart wise (from birth to now) they were expecting to see a VERY sick and VERY little baby.......So when the doctor came in the room and saw a VERY happy and VERY energetic baby, She literally let out a sigh of relief and said, "Well this changes EVERYTHING!!!"......
She said that for his height and weight of 18lbs 11oz......He is PERFECT and where he should be.....He is in the 50th% on THAT chart.... (On the standard charts he is still at about 3% for height and 3% for weight).....So she was very pleased!! Not to mention the fact that she says that despite him being very small.....He is reaching FULL potential!!! YAY!!!
They are FINALLY discontinuing the Zantac.......PRAISE GOD!!! That stuff was horrendous to give Avery.....UGH.....And we have gone up to a full 15mg of Prevacid......GREAT!!!
The past few days have been filled with Avery coughing throwing up almost EVERYTHING he eats......(he's not sick......he has no fever....no lethargy....nothing......We think his reflux is breaking through again)......and I am having a SUPER HARD time getting him to SWALLOW!!! It's so stressful and exhausting!!! Some days I feel like giving up......I feel like "What's wrong with this baby??".........Not swallowing is horrible because you know you are feeding him what he loves and he is just letting it sit in his mouth until it all comes out......GRRRRRRR........Or else he lets it sit in there until he chokes on it.......Or until he sneezes and it all comes out all over the place......I DO NOT enjoy feeding him when he eats like that........
Hopefully this extra Prevacid starts working soon.....I don't know how much more of this I can take.......
Oh and p.s.......Why does everyone have to give their 2 cents on how to get him to eat when they have NEVER had a child who didn't want to eat.....I am SOOOOOO SICK AND TIRED of people saying, "Well maybe he's not hungry?." "Maybe he doesn't want THAT?." "Maybe you're feeding him TOO much?."........UGH......GO AWAY!!!! I hate to be rude and I know that people mean well......But they DON'T KNOW Avery like I do......They don't know the "games" he plays ......And quite frankly their suggestions are like dust in the wind.......I want SOLUTIONS......Help me out with different techniques to feed him......Maybe a different food at that time........Because NOT EATING is NOT an OPTION!!!....... I feel like he's already eating bare minimum......I'm not decreasing his feeds.....We need to INCREASE....... (We had been doing well and got Avery to eat ONE FULL extra meal a day....YAY.....right before this whole "not eating" thing came into play)
He usually has NO PROBLEMS with eating FULL FEEDS at home, but when we are out and at other people's houses..........(especially this time of year.....barbecues, picnics, swimming, park, etc....)....He eats like a bird or refuses to eat all together.......(oh and we know he is fully capable of eating as much as we give him.....he does it well for a couple of weeks and then he regresses)
OK....ENOUGH about that :0)
Let's just get this reflux under control......and hopefully that will help him :0)
Thank you to everyone for all of your continued prayers and support!!!
God Bless!!
p.s. Sorry I have been MIA, but I'm sure you can understand why........ <3.......I spend ALL day trying to get him eat and be comfortable and my husband has had off from work So I haven't had much time for anything........ha ha.....And my toe nail polish is just about all chipped off and I have yet to be able to even fix that......he he he ......Hopefully, I'll have a few minutes tonight to tend to MYSELF for once :0)
I Don't Need Oxygen
22 hours ago
17 comments:
it sounds like its just a big game eating time, so why not put some plastic down and make it an even bigger game, play along but while playing sneak in a bit or two (might work) now Im one of those (sorry) Hugs and prayers Sheila
That's awesome the appt went so well. I'm sorry that Avery isn't a great eater and I really hope and pray that he gets better at it. Totally understand getting sick of everyone's 2 cents.
I wish i had some great advice or some great words of wisdom...but I don't...but I DO want you to know that my thoughts and prayers are with you & "Piggers" :)
keep ur head up!!
Glad you had a good appt. Missed ya & one thing I love is when someone tries to tell you something about your child & they don't even have kids. I mean having a child & just being around them are 2 different things. Prayers & HUGS :)
Caroline
Awww, Alyson! I have so been where you are now. The worst critic is an occupational therapist. I remember her wanting to force me to have the NG tube put back in Lily after her heart surgery. I told her, NO! Lily will eat when she is ready. And then when Lily does start eating, she was eating too slow for the occupational therapist. It drove me crazy. Just give our kids a break. They had rough starts and for them to be eating what they are is way better than forcing it thru a tube that is shoved down their throat. (sorry, I got off a little rant there)...but I just wanted to let you know that I understand your frustrations and you are in my thoughts and prayers..because getting a kid to eat that has acid reflux is tough for everyone.
I'm glad that you had a great appointment. That truly makes a difference.
Go paint your toenails, have a glass of iced tea (or whatever you drink) and enjoy yourself. You deserve it!
~Joy
So sorry to hear that! Great news that he is doing well in other areas. I have no advice or solutions, but I have been there. Molly had reflux really bad, then she just grew out of it around 1. So I know what it is like to clean everything up and give medicine! Sorry!
Doesn't everyone always have the solution to your prob? lol. I know, it's irritating.
As for eating in public/away from home, my kids are that way too. Much to excited about new surroundings and playing to eat. Last night had a picnic with family, and when we walked in the door of home at 8pm, my son says, "mom, I'm hungry." Arg.
Okay i have two suggestions and if they dont work for you, or you;ve tried them, or whatever.. i wont be insulted if you cant or dont use them :o) but dont rip my head off (hehe)
what about those pediasure drinks? they are full of vitamins and are kinda like a meal replacement..
and what about trying a new cool plate or spoons with characters or animals or anything. just something to take his attention of eating and onto the silverware or the cool picture on the plates..
<3 you!
As his mommy, do you think he's not eating because of the reflux or because he is being a stinker? Does he throw up right after he eats it?
Ugh...I would be right with on being frustrated at unsolicited advice. Really, do people think they know babies better than the mama does?
I just thought of something, Alyson. You said that he likes bottles now and not the spoon so much...Maybe he is cutting his molars. He is a year old, right?
My kids refused food when they cut their molars..all the wanted was the bottle. But I'm no help with bottles, Miss Lily still gets one when she goes nightnight..and she is 19 months old.
Good luck!
it sounds like the dr. is really impressed with his growth so far, so you must being a lot of things right.
let me give you some "advice" (ha-ha): you're the mom, you know your little man the best; trust your knowledge and your instincts. looks like you've been making the right choices up till now.
reflux is horrible *hugs* for you:) (no advice though- i hate it too)
Aw, poor Avery =( I'm so glad the appt went well!! That's good news at least. I hope the eating gets better for you - I'm sure the heat doesn't help!
Oh, I hear you! My little Wyatt is still having feeding issues and I'm practically pulling my hair out over them!
Wyatt had pphn REALLY bad at birth and I was told he may not show signs of hunger/thirst due to brain damage. Thank God he now does, but he is very hard to feed.
Good luck and God bless,
Melissa Leavitt
We put ketchup on Calet's plate to get her to eat anything. And ranch. haha! Good luck!
I found your blog from a comment you left at Kelly's Korner recipe blog. I am a pediatric speech-language pathologist and work with feeding kids half my day. I know how frustrating it can be when a kiddo refuses to eat for a reason and I have learned there is always a reason.
Have you guys ever seen a speech pathologist that is a feeding specialist?
I know you get frustrated with people giving advice that as a momma you know doesn't work. But if you have a question a might could answer you can email me at
alixslp@yahoo.com
Alix
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